Life With Central Pain Syndrome is a dedicated patient-to-patient support community for patients and families affected by Central Pain Syndrome and Chronic Pain. LifewithCentralPainSyndrome.org is powered by BensFriends.org, a group of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with chronic pain disorders.
If you or your family has been affected by Chronic Pain Disorders, consider LifewithCentralPainSyndrome.org your second home. LifewithCentralPainSyndrome.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
Central Pain Disorder is an Umbrella term to describe chronic pain that occurs despite healing and with no obvious injury to tissues. This may be the result of damage to the nerves that transmit pain (neuropathic pain), but chronic pain also affects the entire nervous system, sometimes in a permanent way. many chronic pain disorders can manifest in a specific way and accordingly have a different name. These include Central Pain Syndrome, Allodynia, Complex Regional Pain Syndrome(CRPS), Reflex Sympathetic Dystrophy, Hyperalgesia and others The pain is real but the cause often unknown making it hard to treat. Any patient with a chronic Pain Disorder can find help and support here.
This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.
In 2007, Ben Muñoz suffered a rare form of stroke caused by an Arterio-Veinous Malformation (AVM). He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, Bens Friends provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives. Bens Friends is supported by donations from its principals and community.